We believe in supporting children.
Hope Loves Company is the only national nonprofit organization serving children impacted by ALS Lou Gehrig's Disease.
Our programs provide no-cost support, resources, and care for children ages 6-25, including family camp retreats, virtual hangouts led by mental health experts, and age-specific education to support children through their grief, loss, caregiving, and mental health journeys. Our children are equipped with healthy coping techniques, lasting connection, and a community that is hopeful.
Programs Full of Hope
Weekend family camps across the country where kids ages 7 to 18 get fun, rest, and real coping tools alongside kids who truly get it.
Camp HLC
Monthly virtual hangouts led by child life experts and therapists, so kids stay connected, supported, and laughing between camps.
Beyond the Bunk: HLC Hangouts
A monthly virtual circle for young adults who grew up with ALS in their family, with space to connect, process, and plan what's next.
Young Adult Retreat
Monthly virtual meetups where parents and caregivers find community, learn about programs for their kids, and swap resources with others who get it.
Parent Meetups & Support Groups
Free care packages full of comfort, resources, and hugs, mailed to kids when ALS enters their family. A little reminder that they are not alone.
Hugs of Hope: Care Packages
We create space for children to build community, laugh and find respite, all while developing healthy coping techniques. Hope Loves Company brings comfort and light for youth caregivers navigating ALS in their family dynamic.
Children who are caregivers are often underserved.
A large number of children, also referred to as youth caregivers, provide care for sick and disabled siblings, loved ones and parents. Nationally there are an estimated 5.4 million young caregivers between the of 8 and 18 who shoulder considerable responsibilities, undertaking daunting tasks such as assisting with physical and emotional support, and at times, managing medical tasks like aiding with feeding tubes, managing medications, household tasks, and communicating with nurses or doctors – all while balancing educational and social commitments.
Cases of ALS are projected to increase by 2040.
While ALS continues to be a rare disease and numbers of diagnosed cases are hard to ascertain, research indicates that cases are predicted to rise by nearly 70% by 2040. This increase accounts for an increase in the United States. As the numbers of diagnosed individuals continues to rise, so does the number of children impacted by this disease and the need for the programs of Hope Loves Company.
Grief support and needs have no timeframe.
Grief doesn't follow a timeline, and neither do we. Kids can join our programs whenever ALS enters their lives and stay as long as they need us. Many grow up to become mentors, volunteers, and even board members.
There should be no financial barriers to support.
Every program is completely free for families, and travel support is available too. An ALS diagnosis brings real financial strain, so we take cost off the table and let families focus on what matters most: each other.