NEWS: Hope Loves Company provides free camp for kids who live with a loved one diagnosed with ALS
- brennamays
- May 21, 2023
- 1 min read
A nonprofit worked this weekend to support families of ALS patients by providing a camp for kids.
ALS, or Lou Gehrig's disease, causes limited physical functioning. Average life expectancy is between two to five years.
Hope Loves Company provides a free camp for children and teens whose lives have been changed after a parent or family member is diagnosed with ALS or are living with someone who currently has it.
One rainy Saturday did not stop the kids at the camp at Fairview Lake from having a good time, but that is what this particular camp is about --- turning rainy days into hope.
I was diagnosed with ALS and had lots of pain in my legs. I unfortunately couldn’t walk and was in a wheelchair. The disease progressed quickly, and there’s been little or no progress in finding reliable medical treatment for this horrible disease. In January this year our family doctor decided I should try alternative treatment as riluzole 50 mg didn’t slow the progression; I agreed and decided to start the ALS/MND protocol offered at UineHealth Centre. It’s been 4 months into the treatment, and the disease is totally under control, with no signs of muscle weakness, muscle pain, or choking when I eat. I recently have been able to walk down our street and back, something which I couldn't do prior…